Adenoid Cystic Carinoma – a Cancer

Why I’m here.

On the 4 January 2016 I wrote my first consignment on ” blogging 101″ about “Who I am”, but I never wrote, “why I’m here”.

I will now continue part 2 of why I’m here, I am a writer, and enjoy it very much, but there’s another reason.

I have Adenoid Cystic Carinoma – a Cancer

I would like to share with my readers, as the months past by how this is progressing, also may be able to help others with this cancer, and hopefully, get a question and answer in the comments, as there isn’t much on the internet about this type of cancer.

May 2015 I was told I had ACC (Adenoid Cystic Carinoma), a very rare and unique form of cancer, it is known to be unpredictable in nature, with a typical growth pattern of being slow and gradual. but as time goes by it can be progressive and relentless.

Adenoid Cystic Carcinoma a Cancer

About the picture – Micrograph of an adenoid cystic carcinoma of a salivary gland (right of image). Normal serous glands, typical of the parotid gland, are also seen (left of image).

In my case it is very rare (only 12 recorded cases in the world) it has been on my lip for some 30 years, so I never worried about it until about eighteen months ago it started getting larger and larger.

Off to the Doctor, I went so you can imagine the shock I got when the results from the biopsy I found out it was cancer, within a fortnight I was in the hospital, having it removed.

ACC occurs most commonly in the oral cavity it can occur in as many as 38 different organs in the body, but commonly considered to be a salivary gland tumor.

This is “why I’m Here” I need to have something to keep my mind active by having my own site, with help from “Blogging 101” which I’m learning now how to do it, I hope that other readers interest in this rare cancer, will be my future readers as I progress through this very trying time.

10 days after cancer op

This cancer has taken so long to be diagnosed, it could have already spread into adjoining areas through nerve invasion or metastasized to the lungs, liver or bone as well.

It is eighteen months since I had the operation, still under specialist next visit in February.

This photo was taken 10 days after my operation.

It’s a waiting game, this article will be continued.

October 14th’ 2016, not good news.

I’m going to have an MRI to see why my face in so numb and very bad pains in the head.

Not happy, will write more when I get the verdict.

15 December 2016.

There is nothing they can do for me, so I count every day as a blessing I will enjoy life while I can.

Christmas Greetings to you all.

14 thoughts on “Adenoid Cystic Carinoma – a Cancer

  1. Bless your heart. You are brave and courageous and I admire your strength to teach the world about this rare cancer despite everything that you are going through. I will look forward to keeping up with you and your health.

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  2. It is a hard journey. My husband Andy had cancer in the base of his tongue two years ago. It seems to be gone now, but the treatment (radiation and chemo) was brutal. I’m in Blogging 101 too – and behind! I will follow you.

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  3. Oh, bless! I’m thinking of you on your journey. My partner, Tom (whom I write our blog with), his father passed away from cancer last year. He found out he had it and passed away all in the same month. It was such a shock, and we are still all in disbelief. Not often is our mortality (and the mortality of those we love) so roughly and boldly brought into view. Cancer touches everyone in one way or another. Tom is cycling 750 miles next month to raise money for cancer research. I know that there are no words. I just want to let you know, that even though we have never met, we are both with you. Much love, Emma and Tom.

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    • Thanks for commenting, that would have been a terrible shock so quickly, no one had time to get the mindset about the bad news, my family has had time, but it’s still hard on them, my husband has prostate cancer, so very hard for my family.
      All the best to you, 750 miles is a long way, sending blessing your way.

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  4. Thank you for sharing your story. You’re brave to post your photo. I took some photos after my final cycle of chemo treatment for six month. I took the photos to remind myself where I had been. I know that you’re still in treatment. Best wishes to you!

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